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Mika, parrain du Téléthon 2024
Actualité
20/09/2024

Telethon 2024: Mika is the new patron !

Alongside the hosts of France Televisions and surrounded by numerous artists, Mika will use all his talent, sensitivity and energy to support families in their fight against rare diseases. Discover his message !

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Le 21 septembre, c'est la journée mondiale des Myosites
Actualité
20/09/2024

World Myositis Day on September 21

September 21, 2024 marks the 2nd World Myositis Day. At last year's World Myositis Congress in Berlin, international associations fighting inflammatory myopathies decided to dedicate the day to raising public awareness and mobilizing resources around these rare diseases. This worldwide initiative aims to better understand and treat myositis by uniting efforts on a global scale.

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Logo de la journée mondiale sensibilisation aux dystrophies myotoniques
Actualité
13/09/2024

September 15: World Myotonic Dystrophy Awareness Day

September 15, 2024 marks the 4th International Myotonic Dystrophies Awareness Day. This event, supported by over 60 organizations worldwide, aims to raise awareness among the general public, healthcare professionals and political decision-makers of the need to improve diagnosis, care and support for patients, and to speed up the development of medicines. The AFM-Telethon, which brings together French patients affected by these diseases, is committed to speeding up research. This new edition focuses on two specific areas in particular: raising awareness and educating clinical care teams, and preparing participants for clinical trials.

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Sacha traité par thérapie génique dans le cadre de l'essai Généthon
Actualité
06/09/2024

World Duchenne Awareness Day: Genethon at the forefront of the fight against Duchenne muscular dystrophy

World Duchenne Muscular Dystrophy Day provides an opportunity to note the acceleration in the development of innovative therapies for this neuromuscular disease, which is the most common in children. Gene therapy is one of the most promising avenues. Genethon, the AFM-Telethon laboratory, is currently developing a drug candidate which has demonstrated its efficacy in the first patients to be treated. Discover our video of patient testimonials ! 

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AFM-Telethon-histoiry-French-Telethon: A look at the origins of a unique event in terms of participation and fundraising.  
Page
25/06/2024

History of the Telethon

Created in 1987 at the initiative of Bernard Barataud and Pierre Birambeau, both fathers of sons suffering grom Duchenne muscular dystrophy, the Telethon combines, since its first edition, a TV program and dozen of thousands of events throughout France. Discover the birth of this unique fundraising event.  

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23/08/2022

Contact us

Phone number: + 33 1 69 47 28 28

Postal address:
Association Française contre les Myopathies,
1, rue de l’Internationale,
91002 Evry,
France

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Page
23/08/2022

Terms and conditions

You are now on a website that is edited by the French Muscular Dystrophy Association (AFM-Téléthon), a 1901 law association of public utility. Its headquarters are based in Paris : AFM-Institut de Myologie, 47-83 boulevard de l’Hôpital, 75651 Paris Cedex 13.

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Rubrique
23/08/2022

Our victories against the disease

From formerly unknown diseases to conquered diseases, a medical revolution is underway and victories are multiplying.

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Rubrique
23/08/2022

Resources

Find here information on diseases : advances of research booklets presenting the lastest information on a given disease or group of diseases, information on trials and access to the Myobase portal. 

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AFM-Telethon's fights for patients with a neuromuscular disease, rare disease and people with a disability
Page
23/08/2022

Our fights

AFM-Telethon has long struggled to defend the rights of patients, of people living with disabilities, and to obtain recognition for rare diseases. As a driver of research and innovation, it defends an ambitious national policy.  

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AFM-Telethon's strategy of general interest
Page
23/08/2022

A strategy of general interest

The AFM-Telethon has chosen to implement a strategy of public interest to benefit as many people as possible.  

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AFM-Telethon-bioproduction-revolution: The challenge of industrializing their production is a crucial one.
Page
23/08/2022

The bioproduction revolution 

While the first gene therapy drugs are obtaining marketing authorization and being made available to patients, the challenge of industrializing their production is a crucial one.

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La révolution de la myologie par l'AFM-Téléthon qui en fait une discipline à part entière
Page
23/08/2022

The myology revolution 

Peeling an apple. Lifting your arms. Walking. Smiling. Breathing. These routine actions use muscles and we accomplish them without thinking. But with neuromuscular diseases, the muscles are attacked and movement is prevented. In order to better treat them, AFM-Telethon wants to make myology a separate discipline. 

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