Une moment d'échange entre deux jeunes filles et un chercheur

AFM-Telethon

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Families and researchers are counting on you !

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Sacha traité par thérapie génique dans le cadre de l'essai Généthon

World Duchenne Awareness Day: Genethon at the forefront of the fight against Duchenne muscular dystrophy

World Duchenne Muscular Dystrophy Day provides an opportunity to note the acceleration in the development of innovative therapies for this neuromuscular disease, which is the most common in children. Gene therapy is one of the most promising avenues. Genethon, the AFM-Telethon laboratory, is currently developing a drug candidate which has demonstrated its efficacy in the first patients to be treated. Discover our video of patient testimonials ! 

Logo de la journée mondiale sensibilisation aux dystrophies myotoniques

September 15: World Myotonic Dystrophy Awareness Day

September 15, 2024 marks the 4th International Myotonic Dystrophies Awareness Day. This event, supported by over 60 organizations worldwide, aims to raise awareness among the general public, healthcare professionals and political decision-makers of the need to improve diagnosis, care and support for patients, and to speed up the development of medicines. The AFM-Telethon, which brings together French patients affected by these diseases, is committed to speeding up research. This new edition focuses on two specific areas in particular: raising awareness and educating clinical care teams, and preparing participants for clinical trials.

Our fight to cure

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60 years of fight against diseases

The French Muscular Dystrophy Association (AFM-Téléthon) is composed of patients and their families who are affected by genetic, rare and progressive diseases. Discover 60 years of fight.

Join the Telethon for french people abroad

You live abroad and want to be part of the great Telethon adventure? Join us!