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AFM-Telethon's organization : Laurent Tiennot-Herment, Chair of AFM-Telethon
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08/07/2025

Our organization 

Committed to scientific research as well as to the support of patients and their families, AFM-Telethon acts independently, guided only by the urgency of the progressive disease, for the benefit of patients.  

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Sacha, ambassadeur du Téléthon 2024, en compagnie de ses parents
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08/07/2025

Our accounts 

Transparent and meticulous management: in 2024, AFM-Telethon committed €97.8 M to its social missions, in addition to €14 M in advances and investment for the Cure mission.  

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Le plateau de l'émission télé du Téléthon
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08/07/2025

The TV program

Since 1987, the Telethon is a nearly thirty hours TV program broadcasted on the France Télévisions' channels. Discover all the ingrediants of the TV show.

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Des bénévoles lors d'une animation Téléthon
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08/07/2025

People coming together

At each Telethon, thousands of volunteers and partners join forces to organize fundraising initiatives all over France and abroad. This participation is unique by its sheer scale.

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AFM-Telethon-become-partner: your company can get involved in various ways.
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08/07/2025

Become a partner 

Participation in the Telethon or support for our therapeutic and social innovation projects, your company can get involved in various ways. Find out how to become a partner/sponsor of AFM-Telethon.

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AFM-Telethon's actions to support patients and their relatives
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08/07/2025

Our actions to support patients 

AFM-Telethon is battling on all fronts, from access to diagnosis and appropriate treatment to close support, giving priority to the search for innovative solutions and a response to the needs of patients. 

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AFM-Telethon's commitment to innovation to speed up the development of innovative biotherapies
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08/07/2025

Our commitment to innovation

Encouraging innovation, creating pathways between academic research and private research, supporting those involved in developing the drug: the AFM-Telethon is investing to speed up the arrival of innovative biotherapies. 

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AFM-Telethon's support for research on rare genetic diseases
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08/07/2025

Our support for research

Treatments and therapeutic innovation are born out of the knowledge of genes and the understanding of the mechanisms causing disease. Beyond its three pioneering laboratories combined within the Biotherapies Institute for rare diseases, AFM-Telethon has been developing collaborations for many years with scientists from all over the world.

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AFM-Telethon's laboratories
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08/07/2025

Our labs

To accelerate the development of innovative treatments for rare diseases, the AFM-Telethon has created its own laboratories. Devoted to gene therapy of rare diseases (Genethon), to stem cells (I-Stem) and to myology (Institute of myology), they are now international leaders in their field. Located within the Institute for rare disease biotherapies, the Association’s three laboratories play a major role in the medical revolution.   

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Ivy, ambassadrice du Téléthon 2023, embrassée avec amour par ses parents
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07/07/2025

Our missions

Innovation in scientifical, medical, social and technological fields, AFM-Telethon is a pioneer in the research and support to improve patients’ lives. Three missions are at the heart of its action: Cure, Care, Communicate.

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Crigler-Najjar
Actualité
21/06/2025

International Crigler-Najjar Day: A Treatment in Trial

June 21 marks International Crigler-Najjar Syndrome Day. This rare genetic liver disease forces patients to live under intensive phototherapy. Thanks to a gene therapy developed by Généthon, the hope of a life without lamps is becoming a reality for some. But not all patients have access to it yet.

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Le 20 juin, à l’occasion de la Journée internationale de la dystrophie facio-scapulo-humérale (FSHD), l’AFM-Téléthon réaffirme son engagement aux côtés des personnes concernées et fait le point sur les progrès de la recherche.
Actualité
20/06/2025

International FSHD Day: Where Does Research Stand?

On June 20, for International Facioscapulohumeral Muscular Dystrophy (FSHD) Day, AFM-Téléthon reaffirms its commitment to individuals living with the disease and provides an update on recent research progress.

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AFM-Telethon-progress-in-research-booklets
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19/06/2025

Advances in research 

Documents to discover everything about the latest progress in research for a given disease or group of diseases. See the publications in English. 

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June 2 marks the European Myasthenia Gravis Day, an awareness initiative launched in 2023 by the European coalition ALL United for MG. This mobilisation brings together several patient organisations across Europe, including AFM-Téléthon.
Actualité
02/06/2025

June 2: Myasthenia in the Spotlight – Disease, Research, Commitment

June 2 marks the European Myasthenia Gravis Day, an awareness initiative launched in 2023 by the European coalition ALL United for MG. This mobilisation brings together several patient organisations across Europe, including AFM-Téléthon. Its goals: to raise awareness of this rare disease, inform healthcare professionals, and actively support research efforts.

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